Susannah Robinson holds multiple volunteering roles for the MS Society, including Group Coordinator of our Gwynedd/Ynys Mon Group and Chair of Cymru Council.
She tells us about her time on the Assemble Volunteer User Panel, and shares some tips on what you can do to prepare for the launch of our new volunteer management system.
Have you ever wondered how to explain MS to children? We started to realise, from listening at ‘Newly Diagnosed’ events, how daunting talking about MS at home can be for both parents and children. There was a real need for us to support our community by helping them explain MS to children in an age-appropriate, fun and educational way.
On Thursday 26 September, celebrities and guests gathered for a spectacular evening at Illuminate, at the Science Museum, to raise vital funds for people living with MS.
Guests enjoyed a star-studded interactive quiz, along with a three-course dinner and a special silent auction, featuring exclusive designer items from Sir Rod Stewart’s wardrobe.
So far, the event has raised an incredible £220,000 (and counting) for the Stop MS Appeal, which aims to raise £100 million for MS research.
We’re all aware (and often reminded) of the importance of keeping everyone’s data safe. But we sometimes forget that this goes beyond the kind of personal data - involved in fraud and identity theft - that we’re always keen to protect.
In fact, according to data protection regulations, what’s known as ‘sensitive information’ about someone needs even more protection than their personal data.
Sensitive information includes details about someone’s:
Assemble, our new volunteer management system (VMS), is launching next year. It will simplify processes, give you control of your personal data and provide a central source of information. It will also replace the Portal and Volunteer Website, both of which have now reached end of life.
This page will have all the latest news and support available to get you started on Assemble, including 'how to' videos and guides. You can access these in the support section below and we'll add more resources as we start using the system.
While running your group, you may need to share personal information about your group members and/or those who use your services. Any third-party providers handling this data must undertake to keep it safe.
Throughout this year we’ve been letting you know about plans to launch Assemble, our new volunteer management system (VMS). The system will simplify processes, give you control of your personal data and provide a central source of information. It’ll also replace the Portal and volunteer website, both of which reach end of life this year.
If you're thinking about getting more active, we're delighted to share a new offer with you. The Gym Group has 24-hour gyms in 240 locations, and won't tie you into a contract.
Until 30 September, you can sign up with The Gym Group (https://www.thegymgroup.com/) for no joining fee and 15% off the usual monthly fee.
To access this offer, use code: TGG15MSSOCIETY
Anyone joining after 1 October will still have no joining fee, and 10% off the usual monthly fee.
Our Impact Awards are one way that we recognise the commitment, achievements, and successes of our volunteers. They shine a spotlight on our volunteers’ amazing contributions and the impact they have on people affected by MS.
It’s so easy to nominate someone you think deserves recognition for their volunteering, so don't forget to tell us about them.